Living with EDS and CMT has changed me, I’d be a liar if I didn’t admit it. We tend to automatically think about the parts of our lives…
I’ve been reading a lot lately about autism and the ability of autistic children to hold it together over the course of a day only to explode as…
Invisible illness is part of the package in our house, where Charcot Marie Tooth Disease, Ehlers-Danlos Syndrome as well as the lovely symptoms of dysautinomia are part of life…
la·beled, la·bel·ing, la·bels or la·belled or la·bel·ling 1. To attach a label to 2. To identify or designate with a descriptive term; describe or classify This last year there has been much talk about labelling our children. Everyone has an interest in the debate. Doctors, school, family. Who really has…
An open letter to teachers of children with invisible illness I know that teachers want to do the best for my children, I can see it in their…
An Open Letter To Teachers of Children With Invisible Illness Writing my latest blog entry has been an emotional and cathartic experience. It is based on supporting my…