So, you’ve been diagnosed with a rare disease, perhaps you are unable to do some of the things that you used to be able to do, or you are worried that life will change and aren’t sure how it will play out for you, that life as you knew it is over. Maybe things have been slipping for a while, a gradual change in what you are able to do. For me it took a while to come to terms with the first ‘big’ diagnosis, I took time to grieve, to get my head around things. The second big diagnosis I handled in a completely different way, it was a relief. Whatever your particular set of circumstances, however it might make you feel I’m here to show you that it’s OK and often there is a way around things.
A ridiculous amount of tea was consumed in the process of building this project. Add some fuel if you'd like to keep me going!