My Pilates journey.
At the medical conferences that I attend, be it related to Charcot Marie Tooth disease (CMT), Ehlers-Danlos syndrome (EDS) or for EDS kids, people ask the experts again and again ‘What can I do for myself to improve my physical condition? (Or that of my kids) Where do we start? People genuinely don’t want to struggle anymore they are ready to help themselves, to fight to keep their mobility, but are at a loss as to where to begin. Many have had bad experiences with physiotherapy, can’t access the right services or have given up trying and as a result have become more de-conditioned. Making everything harder. The answer from the professionals is always move more and take up activities like swimming and Pilates.