This is important and I apologise if this section is a bit heavy but it is a bit of a minefield for parents, particularly those new to the system. As parents of a child with Ehlers-Danlos syndrome you may have questions like; ‘What support should my child have in school?’, ‘Do they have a Special Educational Need?’ or ‘Should I apply for an Education Health and Care Plan?’. There are no easy answers to these questions because every child with EDS will present differently.
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