Brunel Physiotherapy Lecture – A Round Up

Brunel University – Common (or not so common) Paediatric Conditions Last May I had the great opportunity of being welcomed to Brunel university to co-present a lecture on common paediatric conditions with the head of our local child development centre.  The lecture, to second year physiotherapy students, formed…

My Love, Hate Relationship With Tea

he great British cup of tea… I have to admit as I sit here cup in hand, I am slightly addicted.  Meeting up with my with my girl friends at the local coffee shop on a Friday morning wouldn’t be right for me without my nice cup of tea.…

EDS Kids Handbook – The Memes

The Memes from the upcoming ebook by Kendra Neilsen Myles and Sarah Wells, with a special section on Vascular EDS written by Deborah Roach.  A sneak peak into the Top Tips section of the book.  Share far and wide, we are #Stronger2Gether.      SaveSave SaveSave

Dear Younger Self

Thirteen years ago I gave birth to my first child, as he enters adolescence (and I wonder how that could be possible) I realise a lot has changed and there is much that I have had to work out for myself.  So I decided to write my 2004…

Raising EDS Kids

Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives so that you can see what goes on behind the scenes so to speak.  To orchestrate a semblance of normality…