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This post sums up the whole process of getting my daughter her wheelchair, from referral to her first outing and all the bits in-between.  The practicalities and emotions…

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I loved my job.  In fact it wasn’t a job to me.  It was more like a vocation, I enjoyed getting up on the morning and going to…

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To think carefully about how to help families navigate the education system when their children have an invisible illness like Ehlers-Danlos or Charcot Marie Tooth Disease.  I don’t…

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