To post regularly. All the time people like to read my posts and I like to write them!
To keep myself moving everyday. To stay strong. This is so important, I will keep moving. On bad days I will definitely keep moving. When I’m in a POTS storm this is essential so that my body doesn’t become de-conditioned. When joints are slipping or dislocating targeted exercise is important to strengthen the muscles around the joints to hold them in place, to do the job the ligaments can’t and to keep the synovial fluid lubricating my joints. It is also important to keep my muscles strong long term, they will waste more, particularly in my hands and feet/ arms and legs but I am determined to keep them for as long as possible. Movement of any kind is good.
To walk the dog every day. Yes! And to try to walk a little further before the onset of severe pain. Or to rest then carry on. (I’m not very good at that!)
To complete a 5k walk. This is ambitious and will depend very much on my knee holding out, watch this space! Any volunteers to join me?
To cook good food so that we all eat well. We generally all eat gluten free at home, because I do, apart from the occasional pizza or the kids favourite pasta. The children’s sugary snacks are going to gradually decrease to. I’m also cutting out all added sugar; on my breakfast, in tea. It helps to balance my blood sugar levels and stops me getting shaky.
To drink more water. More water, less tea. And more water and fluid for all the kids too.
To keep all my babies strong and motivated. This always feels like an uphill battle to me! No1 has to stretch more, whether they like it or not! Which is very important now as they have joined a dance crew. No2 has to do their strengthening exercises as they have bruised, sprained feet just from walking around as their ankles and feet are so flexible. No3 starts daily Physio and OT at school so regular communication with their TA and keeping the programme fresh will be of utmost importance. Plus keeping generally smiley, happy and bribing where necessary, the goal for this year to make moving fun.
To not beat myself up if I don’t achieve something one day. Tomorrow is a new day. Some days I won’t get to walk the dog, to get to my pilates class, we may go a week without doing the kids physio. Tomorrow is a new day to start afresh. There may be times when these goals may be too big for me to achieve. I wanted to do a 5K walk last year but I couldn’t walk anywhere without my hip subluxing and my SI joint slipping it has taken over a year to stabilise things, I still do my physiotherapy exercises every day. Goals have to be realistic and may need readjusting. On some days walking to the car is a challenge, sometimes it’s about taking baby steps in the right direction.