££££ Terminal 5, London Heathrow Airport, Hounslow, TW6 2GD  +44 2035899658 Awarded 3 AA Rosettes, La Belle Epoque at Sofitel London Heathrow is the airport’s only fine-dining restaurant. Gourmet French cuisine draws from eclectic world influences.  The name, La Belle Epoque translates to ‘the beautiful era’, and pays homage to the 19th-century French golden age of cultural revolution. It is clearly a  hidden gem at Heathrow’s Terminal 5, only a few miles from our home.  We were introduced to the restaurant by a close friend and self-confessed foodie who has himself eaten at some of the worlds finest restaurants.  If he was raving about this place then we knew that it definitely had something good to offer. This is our fourth visit, we’ve dined with friends, family, just the two of us for a romantic dinner and now we are trying the place with the kids.  Now some of you may gasp…

95 Things NOT to Say to Someone with EDS or HSD

At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that Ehlers-Danlos syndrome may be much more common. Unless you know someone with Ehlers-Danlos syndrome (EDS) or Hypermobility Spectrum Disorder (HSD)…

Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and subtlety, one in which the person is generally unassuming. However, in the second, “secret” life, the true essence of the person is displayed, and is generally only revealed to close family and friends. I am leading a double life. Each morning I get up, my make up goes on and I leave the house to do the school run.  I make small talk in the playground with friends.  Go to coffee once a week with a group of mums.  I smile, I am interested in their lives. It’s important to me that I’m a good mum, friend, sister, daughter.  My house is usually clean and tidy, dinner cooked, (all fresh and gluten free), the bills are paid, we have a decent car. …

The explosion of social media over the last 12 years has opened doors for people in many ways;  It has the power to connect like minded people all over the world, at any time, it gives instant feedback, it increases your visibility. In the world of chronic illness has given people the power to educate themselves about their conditions, to share and learn from each other’s expertise, allowing them to become truly empowered in their own health and wellness so that they can work with health professionals to manage their conditions long term.  Personally, I have learnt so much online, instant access to information fuels my desire to know more, I have connected with some truly amazing people from all over the world that I wouldn’t have had the opportunity to do otherwise and it has opened doors for me to raise awareness about living with chronic illness in schools,…

Burnout – 8 Signs of Caregiver Burnout

I have three children, all affected differently with elements of Hypermobility Spectrum disorder (HSD), Hypermobile Ehlers-Danlos syndrome (hEDS) and Charcot Marie Tooth disease (CMT) and new to the ever-growing list this year is Chronic Fatigue syndrome (CFS/ME).  As well as having hEDS and CMT myself. We would describe…

The Princess and the Pea

he story tells of a prince who wants to marry a princess, but is having difficulty finding a suitable wife.  One stormy night a young woman drenched with rain seeks shelter in the prince’s castle. She claims to be a princess, so the prince’s mother decides to test…